Speakers

Get to Know Them

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Yamile Jackson

CEO and Founder
Nurtured by Design

A PhD engineer and mother of a Zachary, a former micro-preemie that survived a blackout of the hospital by a flood, and was in the NICU during the attacks of September 11. She designed The Zaky, the ergonomic, evidenced-based solution for neuroprotective care and kangaroo care. She also founded Kangaroo Care Day celebrated globally on May 15th since 2011.

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Mrs. California United America 2021
Ashley Randolph

President and Founder
Glo Preemies

Ashley Randolph is a wife and mother to 3 children who were all born premature. She began her passion for helping others while volunteering rebuilding home during 2006 -2010 in New Orleans, La. She created Glo Preemies to help support high-risk pregnant women and families with children in the Neonatal Intensive Care Unit (NICU) worldwide. 


Ashley is most passionate about helping people, especially improving the lives of babies born prematurely in the African American community and providing support and safety net services for their families. She is currently reigning as the 2021 Mrs. California United America.  She is the recipient of the 2017 Presidential Excellence Award for her hard work empowering minority mothers. She is currently  an Advisory Board Member for a multi-million-dollar Racial Disparity in the NICU research study with California Perinatal Quality Care Collaborative (CPQCC) based at Stanford Medical School. She is an author of many hospital publications. She is an insturctional aide and 2019-2020 Chairperson for the School Site Council at Fortune School of Education.  She is also a pregnancy, labor and delivery, and post-partum Doula in -home and at Methodist Hospital. She finds time to volunteer in areas where she can apply her passion and personal experience, such as working with the African American community, babies born premature, special needs population, and in under-served areas. It is her desire to help others reach their fullest potential despite any personal challenges.

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Deb Discenza

President and CEO
PreemieWorld, LLC

Combining fields in technology and publishing, Deb has created PreemieWorld as the go-to space for education, support and resources for the preemie community including the acclaimed book, The Preemie Parent’s Survival Guide to the NICU (with the second edition and e-book due out in May 2020). Prior to PreemieWorld, Deb founded and ran the award-winning Preemie Magazine. In addition to this she helps tens of thousands of parents as the Founder/Leader of the Inspire Preemie Community at https://preemie.inspire.com 

When not sought after for speaking engagements, media and news-related spots for the medical and general public, Deb provides public service to her community in the form of being a founding member and steering committee member of the National Premature Infant Health Coalition and a founding member and former Leadership team member of the Preemie Parent Alliance. She is also is a regular Column Editor for the Neonatal Network’s Neonatal Network Journal, and a columnist for both the quarterly newsletter for the Council of International Neonatal Nurses (COINN) and for Neonatal Intensive Care magazine.   

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Jenné Johns

MPH Author, Speaker, Parent Advisor and National Senior Health Equity Thought Leader

The mother of a micro-preemie, author, advisor, and award-winning national thought leader in health equity. During her families NICU journey, she learned the power of advocacy, patience, and reading to her son.  As an advocate for reducing healthcare disparities, Jenné found herself advocating for the needs of her son, as his survival depended on it.


As an award-winning health care expert Jenne Johns, is recognized nationally as a health equity and specialized thought leader in reducing disparities in premature babies. A micro preemie mom, advocate, and author Jenne self-published Once Upon A Preemie in 2016. Her work includes consulting and blogging for fortune 500 companies on preemie parent needs from a cultural lens and transforming health insurance companies delivery of culturally appropriate maternity programs. Jenne’s media appearances include iHeart Radio, Heart and Soul Magazine, CBS News Radio, Mom Your Business Podcast and Disruptive Women in Healthcare. She has a Masters Degree from Temple University and serves on numerous advisory committees advocating for preemie babies and eliminating health disparities including: The National Coalition on Infant Health, March of Dimes Prematurity Prevention Collaborative. Jenne’s mission is to serve as a healthcare system disruptor who promotes equitable, family, and culturally focused maternity, NICU, and preemie care.


She wrote, “Once Upon a Preemie” which is the only children’s book written for the parents of preemies while they are in the NICU. This bedside companion seeks to motivate, encourage and inspire preemie babies and families until they go home.

 

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